Four days married + six days in the hospital = ten days married.
should will be going home today.
We have a diagnosis tentatively for Lupus. I say tentatively because, it was positive on a blood test, but only a rheumatologist can confirm diagnosis. It is possible it’s not Lupus but one of fifteen other connective tissue disorders. That’s a fancy way of saying your own body attacks your own body and causes inflammation out the wazoo that leads to ALL KINDS of problems.
I should be a redneck medical interpreter, I know..
Steroids calm it down (and did), but Jason can’t tolerate steroids (for long anyway) because of his diabetes. It messes with his sugar levels. We have been PROMISED a doctor of rheumatology that can run blood tests and release him tonight after he sees him at six (this after a patient advocate was called and some VP names were dropped. Yeah. I don’t play. Six days is enough). Then, we can blow this joint. I’m not crossing any fingers, because I will unhook him and walk him out MYself. I already cleared this with the admitting doctor. Heh.
Jason’s ex brought the girls to visit this week. It wasn’t what the doctor ordered, but by far the best medicine.
Blended families working together for the best of everyone’s benefit (and health) – that is a great accomplishment. Healing in more ways than medicinal.
When I told her we were family now – I meant it.
A big part of what has kept me going the last six days through hospital gown modeling. Camping on a chair cot. Crappy nurse care. Not eating right. Frequent back pain. And watching Jason endure and endure and endure has been the many memories of our beautiful wedding.
My friend and new sister Kellene has posted the wedding pictures during our stay in the hospital honeymoon suite.
The photographs have given us warmth and love across the miles to see her talent and see her love for us through the camera lens. I never questioned my decision to hire a photographer for the wedding and I certainly never questioned it being her. Take a look and see why for yourself.
There are more pictures on her blog and website – Bella Lucia Photography and Blog. Please visit her and share our joy with us and her incredible talent.
Also, celebrate that Jason’s illness is manageable and we praise God for that. Thanks to all the friends and family that prayed for us during this time.
We are deeply touched and grateful. Our love abounds and grows stronger through these trails.
This post edited to be part of….
5.) “Keep your face to the sunshine and you can not see the shadow” – Helen Keller
In what ways are you able to stay positive about something that sometimes brings you down?
I commented to Mama Kat I had written so many posts during our pre-wedding and post-wedding that kept us positive through it all and she said to link one up. It was hard to choose. There are posts before and after on the story of Jason’s Mom entering ICU two weeks before our wedding date with a brain aneurysm then a stroke. We managed to pull the wedding off then end up in the hospital too. Despite it all, we kept our face to the sun and we still are. I don’t see any shadows here. Not one.