Ten Days After 10-10-10

Four days married + six days in the hospital = ten days married.

We should will be going home today.

We have a diagnosis tentatively for Lupus. I say tentatively because, it was positive on a blood test, but only a rheumatologist can confirm diagnosis. It is possible it’s not Lupus but one of fifteen other connective tissue disorders. That’s a fancy way of saying your own body attacks your own body and causes inflammation out the wazoo that leads to ALL KINDS of problems.

I should be a redneck medical interpreter, I know..

Steroids calm it down (and did), but Jason can’t tolerate steroids (for long anyway) because of his diabetes. It messes with his sugar levels. We have been PROMISED a doctor of rheumatology that can run blood tests and release him tonight after he sees him at six (this after a patient advocate was called and some VP names were dropped. Yeah. I don’t play. Six days is enough). Then, we can blow this joint. I’m not crossing any fingers, because I will unhook him and walk him out MYself. I already cleared this with the admitting doctor. Heh.

Jason’s ex brought the girls to visit this week. It wasn’t what the doctor ordered, but by far the best medicine.


Blended families working together for the best of everyone’s benefit (and health) – that is a great accomplishment. Healing in more ways than medicinal.

When I told her we were family now – I meant it.

A big part of what has kept me going the last six days through hospital gown modeling. Camping on a chair cot. Crappy nurse care. Not eating right. Frequent back pain. And watching Jason endure and endure and endure has been the many memories of our beautiful wedding.

My friend and new sister Kellene has posted the wedding pictures during our stay in the hospital honeymoon suite.

My brilliant photographer and me.

The photographs have given us warmth and love across the miles to see her talent and see her love for us through the camera lens. I never questioned my decision to hire a photographer for the wedding and I certainly never questioned it being her. Take a look and see why for yourself.



There are more pictures on her blog and website – Bella Lucia Photography and Blog. Please visit her and share our joy with us and her incredible talent.

Also, celebrate that Jason’s illness is manageable and we praise God for that. Thanks to all the friends and family that prayed for us during this time.

We are deeply touched and grateful. Our love abounds and grows stronger through these trails.

This post edited to be part of….
Mama's Losin' It
Using prompt…
5.) “Keep your face to the sunshine and you can not see the shadow” – Helen Keller
In what ways are you able to stay positive about something that sometimes brings you down?

I commented to Mama Kat I had written so many posts during our pre-wedding and post-wedding that kept us positive through it all and she said to link one up. It was hard to choose. There are posts before and after on the story of Jason’s Mom entering ICU two weeks before our wedding date with a brain aneurysm then a stroke. We managed to pull the wedding off then end up in the hospital too. Despite it all, we kept our face to the sun and we still are. I don’t see any shadows here. Not one.

In Sickness

And in health.

I stumbled on that vow. I hesitated forming the words. I stood in that beautiful Church facing my handsome husband and I faltered……

What I wanted to say was in sickness and in sickness. I knew I was marrying a type 1 diabetic. I had experience with one in 2004, an uncle I loved dearly. I was also raised by a step-dad with polio. I knew sickness. I was raised with sickness. I embraced this man’s sickness because that is what I vowed to do. In health? Not so much. It was the sickness I pledged to stand by.

For richer or poorer, meh, I’ll take either.

Love and honor – absolutely.

Until death due us part – I wouldn’t miss a thing. Life is a gift. Scratch that. Life with him is a gift.

Today, I write this blog post from a hospital room.

My husband started feeling worse and worse a few days after the wedding. He hadn’t been feeling completely well for a while. He had gone to the urgent care center a week before the wedding and got diagnosed with bronchitis. They gave him an antibiotics shot, but he still hadn’t quite kicked it ten days later. When breathing laying down got difficult, and his face started swelling. He ventured back to the neighborhood clinic.

They took an x-ray of his lungs and compared it with ten days before, along with his blood work. The x-ray showed more fluid build-up on his lungs, and the blood work showed loss of blood – significantly. Enough that they recommended him going to the ER with their blessing. I couldn’t believe it when he called me.

What? Emergency room? Double pneumonia? Hemoglobin drop? WHAT?

I met him there and waited in the ER. What I expected was an IV of antibiotics and a possible over night stay. But that wasn’t to be. While there was fluid on his lungs, there was not a rise in white blood cells. Nor was he feverish, coughing, or showing signs of pneumonia. The ER doctor that came to admit him advised us, it was not pneumonia, but looked more like congestive heart failure.

Heart failure. *gulp*

My jaw dropped to the floor. My heart and stomach quickly followed.

*PLOP*

All splayed out in a pile of, “What the crap!”. Four days ago I said I DO, or I will, or actually I said vow by vow repeated after the minister in front of God, and 70 or so witnesses. I had no idea how fast those bonds would be put to the test.

I trust God. I do. There are so many blessings about this moment. We had canceled the honeymoon to Canada because of Jason’s mom. It was possible she would have a second surgery this week and we didn’t want to be out of the country when it happened. Come to find out, she did not, but she did get moved out of ICU. We got to talk to her the day before our ER visit. It was wonderful news. It was joyful tears to love on her awake and aware and I’m glad we didn’t miss it.

I am also glad we were not in Canada and unsure of the health care and procedures. I am glad we were not thousands of miles away from our friends and family. I am glad we were not on top of Whistler Mountain – far away from anywhere or anything. I am glad we were not zipping through time and space on an airplane high up in the sky. So many things….that could have been so much worse.

Instead, we take the hospital honeymoon trip. Complete with an HD TV.

Three delicious meals a day by room service (for him anyway). Daily social visits by doctors, nurses, and respiratory therapists. Tons of time together. No kids or dogs. I can even get coffee most hours of the day in the waiting room concierge lounge. It’s all-inclusive folks. Stop being so jealous.

And hey, it’s like camping…..

We are on day three here. All we know for sure is that his heart is not damaged. He does have an enlarged left ventricle, but that is not completely uncommon for a diabetic man with high blood pressure. They were able to relieve him of five LITERS of fluid, so he can breathe easier although there is still fluid on and in his lungs.

We have a test on Monday to check for artery blockage and to fix them if he has any through a heart cath. If it’s not that, it could be a number of things they are hoping to eliminate with tests. Nothing is determined, and not much has been ruled out. It could be congestive heart failure, or it could be a mean virus that caused cardiac issues.

No matter what it is. No matter what our future holds with his health. I will be here.

In sickness, and in sickness……because that is what I pledged to do six days ago.

A Ten Wedding

A wedding of wonder.

A wonder it happened.

A wonder the last minute planning a week prior paid of.

A wonder that I met the wedding photographer right here on my blog.

Whimsical Wordless Wednesday Wedding teasers from our 10-10-10 at 3:10pm ceremony thanks to Bella Lucia Photography.

More to come after our honeymoon is over. Actually we canceled our “real” trip since our Mom is still in the ICU and may have surgery this week. We did not want to be out of the country and all the tickets were re-usable without a fee. We stayed here and are enjoying wedding bliss for a few days around town. We are off today to the State Fair of Texas to say, “HOWDY!” as husband and wife to Big Tex.

Wedding Wordless Wednesday

For all my friends that love all things wedding……..presenting my DREAM bouquet and inspiration for the colors of my wedding.


Beautiful isn’t it?

I owe an onslaught of ideas to Kellene. My friend – a wedding planner, and unbelievably talented photographer – not to mention a wonderous soul full of love and light. Your friendship is God sent and blessed beyond measure.

Please check out her post that has a BIG dedication of wedding bliss for me to indulge in again and again.

Bella Lucia Photography Blog