It wasn’t the fried butter after all…

In October, after our beautiful 10-10-10 wedding, we stayed in town to be near Jason’s mom who had a brain aneurysm two weeks before the ceremony. We canceled our trip to Canada to be near the hospital. Jason, nor I, was comfortable being out of the country and there was no question about staying local.

But, we decided to do some fun things and on day three of our home-town honeymoon, we went to the State Fair of Texas.

Big Tex with a big Texas welcome.

To say hi to big Tex.

The Texas sized ferris wheel.

To ride the Texas sized ferris wheel.

A colorful sight on the Midway of Texas State Fair.

To walk the colorful midway.

Colorful hats, bubbles, and more.

To take in all the sights and sounds of the fair.

Including……Texas State fare of the deep-fried variety. And I do mean variety…….these are actual booth banners of what you can buy to eat – FRIED.

If it fits in the fryer, it will be deep-fried.

These are not even all of them. I didn’t get a picture of the fried beer. That one just turns my stomach……fried……beer??? Ick!

I will say the fried cheesecake was unbelievably good. Then, I really, really wanted a fried snickers. But holy cow, it was really big once it was fried. Jason and I settled on our last fried dish being the world FAMOUS Texas Fried Butter. Oh yahhhh.

Jason holding Texas State Fair fried butter.

The pictures don’t do it justice. The outside was sprinkled with sugar and honey. The center was warm and gooey and absolutely delicious! I heart butter.

One dose will do ya.

This did not last long.

Then we left the fair, and fried fare, and we trekked our way to the car. Jason got short of breath.

Huh?

I chalked it up to lack of exercise, his nagging bronchitis diagnosis, and from too many corny dogs. Not to mention the exhaustion from before/after the whole wedding and mom in ICU stress.

Later, Jason felt worse. Was it the fried butter??

I mean, people joke about the fried foods at Texas State Fair, but seriously, he wasn’t doing well….he ATE fried butter.

The next morning, he couldn’t breathe laying down.

That afternoon, I kid you not, he ends up in the ER and then admitted to step-down cardiac unit. Our honeymoon continued in the hospital……..remember that? If you have not read my Diary of a Hospital Honeymoon, it’s a must read.

Eight days later, he is released with no diagnosis. We needed Doctor House.

But I knew……I just knew….it was the FRIED BUTTER.

And yes, we told them. They swore it wasn’t from eating fried butter, but really?!?! What do Doctors know about fried butter? The entire heart ward was FULL during the Texas State Fair, coincidence???? I think not.

My diagnosis was clear. It was the fried butter and no more of that crap!?!

And that’s where this post comes in, because Jason finally got the bajillion blood tests back the rheumatologist administered. The double strand DNA test confirms his illness is from fried butter Lupus.

It wasn’t the fried butter after all, but I’m still suspicious. 🙂

Jason gets to enjoy fried butter another day and add a THIRD autoimmune disease to his medical chart; type 1 diabetes, hypothyroidism, and now fried butter disease Lupus.

At least we know now why he was hospitalized for so long, for no reason for very good reason. He was really sick (and not faking). We can look forward to treatment, and we can continue on with a prayer that it stays in remission (as it is now).

Thank you all for your kind thoughts and inquires to his health. He is doing very well with all of this. We both are. This is nothing that we can’t handle with God on our side and fried butter not crossing our lips.

Next year, I think I’ll try the fried snickers (j/k!).

P.S. I updated my blog header for Christmas. If you get this by email, or mobile be sure to check it out on a web browser. Many thanks, and happy, healthy no fried butter wishes.

Ten Days After 10-10-10

Four days married + six days in the hospital = ten days married.

We should will be going home today.

We have a diagnosis tentatively for Lupus. I say tentatively because, it was positive on a blood test, but only a rheumatologist can confirm diagnosis. It is possible it’s not Lupus but one of fifteen other connective tissue disorders. That’s a fancy way of saying your own body attacks your own body and causes inflammation out the wazoo that leads to ALL KINDS of problems.

I should be a redneck medical interpreter, I know..

Steroids calm it down (and did), but Jason can’t tolerate steroids (for long anyway) because of his diabetes. It messes with his sugar levels. We have been PROMISED a doctor of rheumatology that can run blood tests and release him tonight after he sees him at six (this after a patient advocate was called and some VP names were dropped. Yeah. I don’t play. Six days is enough). Then, we can blow this joint. I’m not crossing any fingers, because I will unhook him and walk him out MYself. I already cleared this with the admitting doctor. Heh.

Jason’s ex brought the girls to visit this week. It wasn’t what the doctor ordered, but by far the best medicine.


Blended families working together for the best of everyone’s benefit (and health) – that is a great accomplishment. Healing in more ways than medicinal.

When I told her we were family now – I meant it.

A big part of what has kept me going the last six days through hospital gown modeling. Camping on a chair cot. Crappy nurse care. Not eating right. Frequent back pain. And watching Jason endure and endure and endure has been the many memories of our beautiful wedding.

My friend and new sister Kellene has posted the wedding pictures during our stay in the hospital honeymoon suite.

My brilliant photographer and me.

The photographs have given us warmth and love across the miles to see her talent and see her love for us through the camera lens. I never questioned my decision to hire a photographer for the wedding and I certainly never questioned it being her. Take a look and see why for yourself.



There are more pictures on her blog and website – Bella Lucia Photography and Blog. Please visit her and share our joy with us and her incredible talent.

Also, celebrate that Jason’s illness is manageable and we praise God for that. Thanks to all the friends and family that prayed for us during this time.

We are deeply touched and grateful. Our love abounds and grows stronger through these trails.

This post edited to be part of….
Mama's Losin' It
Using prompt…
5.) “Keep your face to the sunshine and you can not see the shadow” – Helen Keller
In what ways are you able to stay positive about something that sometimes brings you down?

I commented to Mama Kat I had written so many posts during our pre-wedding and post-wedding that kept us positive through it all and she said to link one up. It was hard to choose. There are posts before and after on the story of Jason’s Mom entering ICU two weeks before our wedding date with a brain aneurysm then a stroke. We managed to pull the wedding off then end up in the hospital too. Despite it all, we kept our face to the sun and we still are. I don’t see any shadows here. Not one.